Autism Spectrum Disorders in the European Union (ASDEU)
Autism Spectrum Disorders in Europe is a new, trans-European programme involving university, charities and expert institutions to increase understanding of autism.
This website will grow into a unique resource as findings are published and news exchanged. For now, the project has only just started, but sign up for our newsletter to be updated as the programme develops.
The programme will:
– Study the prevalence of autism in 12 countries
– Analyse the economic and social costs of autism
– Develop proposals for early detection programmes
– Validate biomarkers for the disorder
– Train professionals
– Improve understanding of diagnosis, comorbidity and effective care and support for adults and senior citizens with autism
– Propose policies to promote harmonised support for people with ASD across member states
Help us to build a better understanding of autism spectrum disorder (ASD) in Europe!
A straightforward way to contribute is to complete one of our on-line information-gathering surveys.
By sharing your experiences, you will also help to speed up the development of more effective services and interventions for autistic people and their families.
You can find out more and participate in …
All the surveys are being translated into different European languages. Currently all the surveys are available in English and Spanish. Other languages are already available for some specific surveys (when you click on the following links, you will spot if your language is by now available). Anyhow, as other translations are completed, we will announce it here!
“Romanian versions for WP2 and WP3 Surveys, are now available !”
“Finnish versions for WP3 Surveys, are already available !”
“Portuguese versions for WP3 Surveys, are already available !”
We hope you will find the time to contribute to these questionnaires and look forward to seeing your response!
PACT (Pre-school Autism Communication Therapy) Training course
Who is it for? Professionals (Psychologists, Psychiatrists, Speech and Language Therapists, specialist teachers) who are trained and experienced in the social communication needs of children with autism of 2-10 years of age.
Two important ASD events took place recently: The Mid-Term ASDEU project meeting and the XI Autism Europe International congress 2016
“ASDEU Mid-Term Technical Workshop”
It took place in Edinburgh, Scotland, during the 14th and 15th of September, 2016 and was hosted by the National Austistic Society.
XI Autism Europe International congress 2016
Our ASDEU Meeting was organized back to back with the annual Autism Europe Congress in September, 16-18, 2016 in Edinburgh. The congress attracted over 1,500 delegates, therefore the impact and dissemination of the work developed by ASDEU partners has been big during this occasion.
Different ASDEU partners were presenting results from ASDEU activitities in poster and oral communications.
Also, as part of the program of this Congress, there was a Symposium titled: “ASDEU and EU AIMS research projects: results and future impact” where the future of European policies for ASD were be discussed. If you want to watch the video from this presentation, please click here.
WORK PACKAGES
Work Package 1
PREVALENCE AND RELATED SOCIAL AND ECONOMIC COSTSWP leader: Manuel Posada, ISCIII
Estimation of the prevalence for ASD as a whole as well as by diagnostic subtype in the European Union and estimation of related social and economic burden.
Work Package 2
EARLY DETECTION, DIAGNOSIS AND EVIDENCE-BASED INTERVENTIONWP leader: Ricardo Canal Bedia, USAL
To review best practices in early detection and intervention in the Member States of the EU taking into account gender differences.To identify the parameters and biomarkers for diagnosis and early detection of ASD.
Work Package 3
ADULTS TREATMENT AND CAREWP leader: Diana Schendel, AU
To create a comprehensive framework to improve adult autistic treatment and care by adopting an adult lifespan perspective.
Work Package 4
ASD POLICIES IN THE EUWP leader: Aurelie Baranger, Autism-Europe
To assess health education and existing social policies in Member States to support people with Autism Spectrum Disorders at all ages, communities and affected families.To develop a public health plan addressing ASD.
Work Package 7
CO-ORDINATION OF ACTIVITIES WITH THE FP7 EU-AIMS CONSORTIUMWP leader: Tony Charman, King's College London (KCL)
To create synergy between the basic and applied science ASD fields in Europe.
Work Package 5
IMPACT & DISSEMINATIONWP leader: Manuel Posada, ISCIII and Carol Povey
To increase the visibility of the project and the project results.
Work Package 6
EVALUATIONWP leader: Rumen Stefanov, BAPES
The monitoring and evaluation strategy will assure that the project is being developed according to the agreed timetable and the project deliverables are reliable, properly disseminated and fulfill the expectations of their final users.
