Autism Spectrum Disorders in the European Union (ASDEU)
Autism Spectrum Disorders in Europe is a new, trans-European programme involving university, charities and expert institutions to increase understanding of autism.
This website will grow into a unique resource as findings are published and news exchanged. For now, the project has only just started, but sign up for our newsletter to be updated as the programme develops.
The programme will:
– Study the prevalence of autism in 12 countries
– Analyse the economic and social costs of autism
– Develop proposals for early detection programmes
– Validate biomarkers for the disorder
– Train professionals
– Improve understanding of diagnosis, comorbidity and effective care and support for adults and senior citizens with autism
– Propose policies to promote harmonised support for people with ASD across member states
Two ASD events are happening this month: The Mid-Term ASDEU project meeting and the XI Autism Europe International congress 2016
“ASDEU Mid-Term Technical Workshop”
Our next meeting will take place in Edinburgh, Scotland, on September 14 to 15, 2016. It will be hosted by the National Autistic Society.
Meeting location: COSLA, Verity House, 19 Haymarket Yards, Edinburgh, EH12 5BH
This meeting will serve to take stock of the work in progress and to take corrective actions if needed. All ASDEU partners will be attending. Representatives from the EC, WHO, Hungarian Ministry of Health and Autism Speaks have been also confirmed as guests.
XI Autism Europe International congress 2016
It will be organized back to back with the annual Autism Europe Congress in September, 16-18, 2016 in Edinburgh. The congress is expected to attract 1,500 delegates, therefore the impact and dissemination of the work developed by ASDEU partners will be fully guaranteed during this occasion.
Different ASDEU partners will be presenting results from ASDEU activitities in poster and oral communications.
Also, as part of the program of this Congress, there will be a Symposium titled: “ASDEU and EU AIMS research projects: results and future impact” will where the future of European policies for ASD will be discussed.
For more information: www.autismeurope.org
Federación Autismo Madrid” hands one if its Annual Awards to ASDEU Project
WORK PACKAGES
Work Package 1
PREVALENCE AND RELATED SOCIAL AND ECONOMIC COSTSWP leader: Manuel Posada, ISCIII
Estimation of the prevalence for ASD as a whole as well as by diagnostic subtype in the European Union and estimation of related social and economic burden.
Work Package 2
EARLY DETECTION, DIAGNOSIS AND EVIDENCE-BASED INTERVENTIONWP leader: Ricardo Canal Bedia, USAL
To review best practices in early detection and intervention in the Member States of the EU taking into account gender differences.To identify the parameters and biomarkers for diagnosis and early detection of ASD.
Work Package 3
ADULTS TREATMENT AND CAREWP leader: Diana Schendel, AU
To create a comprehensive framework to improve adult autistic treatment and care by adopting an adult lifespan perspective.
Work Package 4
ASD POLICIES IN THE EUWP leader: Aurelie Baranger, Autism-Europe
To assess health education and existing social policies in Member States to support people with Autism Spectrum Disorders at all ages, communities and affected families.To develop a public health plan addressing ASD.
Work Package 7
CO-ORDINATION OF ACTIVITIES WITH THE FP7 EU-AIMS CONSORTIUMWP leader: Tony Charman, King's College London (KCL)
To create synergy between the basic and applied science ASD fields in Europe.
Work Package 5
IMPACT & DISSEMINATIONWP leader: Manuel Posada, ISCIII and Carol Povey
To increase the visibility of the project and the project results.
Work Package 6
EVALUATIONWP leader: Rumen Stefanov, BAPES
The monitoring and evaluation strategy will assure that the project is being developed according to the agreed timetable and the project deliverables are reliable, properly disseminated and fulfill the expectations of their final users.
